Spina Bifida

Spina Bifida is a neural tube defect that occurs when the central nervous system does not properly form during the first month of pregnancy. An estimated 70,000 people in the United States are currently living with spina bifida, the most common permanently disabling birth defect. Disabilities vary widely from one child to another, but most children experience lower extremity weakness and orthopedic problems which will require surgeries or bracing. They may also have bowel and bladder problems. These problems cause continence issues and can leave their kidneys at risk. Finally, most children born with open neural tube defects have abnormalities in the development of the brain requiring placement of a shunt to aid in the circulation of cerebral spinal fluid.

Treatment

Orthopedic:
    • X-rays, bone density, and other measurements
    • Physical and occupational therapy
    • Orthotics (braces, walkers. etc)
    • Surgical interventions as needed

Urology:
    • Routine assessment of bladder and kidneys
    • Clean intermittent catheterization
    • Bowel Management Program
    • Surgical interventions as needed

Neurology:
    • Evaluation, when appropriate, of neurologic functioning using CT scanning and/or MRI
    • Surgical interventions as needed

Pediatrics:
    • Routine health care surveillance
    • Coordination of specialty surgical consultations

Supportive Services:
    • Education and case management by CNS
    • Nutritional counseling
    • Social services and care coordination

Patients are seen on a regular basis in an multidisciplinary team clinic. Using a family-centered care approach, our goal is to maximize each child’s potential for healthy development and attainment of age appropriate independence.

Our goal is to help children reach their maximum potential. If you would like to receive an application for admission to Shriners Hospitals for Children – Los Angeles, please call us toll-free at (888) 486-5437.